Unlocking Excellence - Examining effective community mental health care for people with Intellectual Disability

A 4 year study aiming to identify effective practices in community intellectual disability services for mental health care, reducing inpatient admissions

Project Summary

Background 

People with intellectual disability face higher rates of mental illness and barriers to quality care, often resulting in misdiagnoses and inadequate support. This can lead to placement breakdowns and unnecessary hospital admissions. Evidence-based community mental healthcare is essential to improve outcomes and guide services. 

Why is this important?

This research tackles mental health inequalities for people with intellectual disability by developing evidence-based recommendations to improve community care, promote early intervention, and enhance outcomes​ 

Research Questions

  1. What are the key components and barriers to effective community mental healthcare for people with intellectual disability?​ 
  2. What challenges do healthcare professionals face in meeting the mental health needs of this population, and how can they be addressed?​ 
  3. What are the experiences of individuals with intellectual disability and their families in accessing community mental health services, and what factors influence outcomes? 

To identify current practices and models in community mental healthcare for individuals with intellectual disability, identify gaps in community mental health provision, and identify potential areas for improvement 

Using patient records to identify factors that contribute to positive or negative outcomes including examining patterns in diagnoses, treatment effectiveness, and patient responses to interventions. 

To identify areas of best practice and understand challenges in meeting mental health needs of people with intellectual disability 

With people with lived experiences (individuals and carers) to understand their experiences of accessing mental health services​ 

To develop evidence-informed recommendations 

Pilot our recommendations in a community service using a controlled design​ 

Meet the Team

Chief Investigators: Professor Sujeet Jaydeokar and Mr Danny Acton 

Statistician: Dr Steven Lane 

Qualitative Research Lead: Dr Caroline Mogan 

Research Assistants: Jane Westbrook, Ruksana Begum-Meades and Rosalyn Arnold 

Participation and Engagement Practitioner: Lesley Gledhill 

Co-applicants: Dr Alex Cookson (Mersey Care NHS Trust), Christine Hutchinson (Lancashire and South Cumbria NHS Foundation Trust), Dr Satheesh Gangadaran (Leicestershire Partnership NHS Trust), Dr Dipti Patel (Pennine Care NHS Foundation Trust), Dr Jonathan Williams (Betsi Cadwaladr University Health Board), Angie Kemp (Autism Together) and Dr Steven Lane (University of Liverpool) 

If you want to be added to our quarterly newsletter email circulation list, please send an email to cwp.candidd@nhs.net